JOIN OUR FIGHT TO MAKE RARE KNOWN
Funding Research for Rare Neurogastrointestinal & Motility disorders
YOUR DONATION FUNDS A DESPERATE NEED IN RESEARCH
HOW WE STARTED
From being a healthy 15-year-old competitive swimmer to having to fight for her life almost overnight, Wallace saw first hand the effect a rare condition has on someone. There was never a clear treatment option or an easy diagnosis, it was common to just hear "We don't know" or "We can't help you." It always stemmed from a lack of research, not because doctors aren’t interested, but because of a lack of funding. Becoming so close to other kids and families in the same position, Wallace still thought about the ones who will be diagnosed and on this journey one day too. When one doctor told her to live her life with what she had left, it was personal, and she decided to put everything she had into creating something good.
This is how the Wallace Beeson Foundation was started. How will you help make rare known?
While Neurogastrointestinal & Motility Diseases are rare, collectively it is not, making it worth studying. But with the complicated aspect of the disease, funding is scarce. Nonprofits are the backbone to research. The NIH only allotted $1,745 million of their $33.1 billion investment in medical research to a small type of Motility Disease in 2017. That is roughly about 5.3%.
We think those diagnosed are worth more than 5.3%, don't you agree?